La solitudine di uno studio clinico

“I didn’t know it would feel so lonely being in a clinical trial” - Here’s one of the many lessons learned by Rare Human Lindsay, who joined a clinical trial earlier this year for her myositis. 

Lindsay talks about how hard it is not to have a community to turn to, especially when there are only a few patients with her rare disease who have experienced the same treatment she just went through.

Orientarsi nella cura delle malattie rare può essere estremamente complesso. Se desiderate saperne di più sulle ultime opportunità di ricerca relative alla vostra malattia rara, potete contattare il team di assistenza Know Rare all'indirizzo support@knowrare.com.

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Ultime notizie da Know Rare