Organizzazione in primo piano: NephCure Kidney International

 
NephCure Logo on Know Rare Branding
 

Informazioni su NephCure

NephCure Kidney International's mission is to accelerate research for effective treatments for rare forms of Nephrotic Syndrome and provide education and support to improve the lives of those affected by these protein-spilling kidney diseases.  NephCure addresses both individual and over-arching community needs for those with kidney disease. On a national level, NephCure advocates for federal funding for ongoing research assists researchers in facilitating clinical trials, and finances research initiatives.  

NephCure runs numerous community events, educational programs, and support groups, and provides a multitude of online resources to support the community in the ever-evolving field of Nephrotic diseases, including their Find a Specialist tool. NephCure is international in scope with a separate Board of Directors to serve the community inside and outside of the US. To see the latest from NephCure, follow them on Facebook and Twitter

Informazioni di contatto

 

150 S. Warner Road, Suite 402

Re di Prussia, PA 19406

Telefono: (610) 540-0186

 www.NephCure.org

www.KidneyHealthGateway.com

Resources for People with Kidney Diseases


Ultime notizie da Know Rare

Precedente
Precedente

Chiedi a un consulente genetico: Domande comuni sulla sindrome di Prader-WiIli

Prossimo
Prossimo

Organizzazione in primo piano: Fondazione per la sindrome di Alport (ASF)